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A teensy weensy update, on the past 8 weeks

Robin and I haven’t posted since Kennady got home from the hospital during her last stay because the pace of life right now, feels similar to the pace of an avalanche at your back while skiing...

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Journey Journal Part One

This is the first installment in a series of posts straight from our journal (handwritten).  When we first received the difficult diagnosis for our daughter (still in the womb), we immediately started...

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Gonna Be a Big Week For Us

UPDATE: Oct 27th, 2014 – Kennady is going in on Thursday, Oct 30 for a third try on this surgery.  The surgeon failed to complete the second try because Kennady’s back was too curved for the procedure....

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Kennady turns 14!

Doctors said she would probably live 6months to 2 years. It has now been 14 and she continues to defy the odds by God’s grace. She teaches daily powerful lessons of courage, determination and faith....

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Merry Christmas from The Steeles! (family pics)

  We want to wish everyone a Merry Christmas and a prosperous 2016! Our family loves this season of family, friends, and good food.  We love the dark, cold night of new beginnings when a baby was born...

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How To Be Made Whole

We are constantly wanting to change specific things about our life.  Our hair, our weight, our finances, our job situation or our disability. The list can go on and on.  We are thinking that if this...

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Happy Birthday, Kennady!

Today, is Kennady’s birthday! She turns seventeen years old! What an absolute miracle.  I (robin) remember, when she was 2 days old, standing in a cold, dark room at Brackenridge Hospital listening to...

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The Mess and The Miracle

Trying to diagnose Kennady’s sicknesses is so hard because she can’t actually tell us what is going on.  Over the years, we have learned a lot from her non-verbal communication: facial expressions,...

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Getting your big “ask” out of the way

Today marks 15 days that we have been here in the hospital.  I (Erica) honestly could not have imagined that we would be here this long.  I have also realized that it is rare that you have any idea...

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We are getting so close!

We are getting so close. We approved all the proofs on Robin’s upcoming book last week!  Then, we got an email from our production manager that she found an error on…the cover!! HA!  We had spelled the...

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